RECOMMENDATIONSRECOMMENDATION 1PURSUE THE ADOPTION OF INFORMATIONUSAGE RIGHTS CENTERED ON ADVANCING THEINTERESTS OF CIVIL SOCIETY To tackle these issues, we must beginconsidering our new technologies and legalconcepts such as “information usage rights” assoon as possible. Building on successful casestudies from the past, we need to activelypursue initiatives focused on civil society andindividuals that would allow them to grasp aholistic view of society with the cooperation ofevery individual and the support of platformoperators. Where possible, these rights shouldempower users to own their own data. Forexample, in healthcare, platforms to access one's own data could pave the way for novelconsent mechanisms that enable large scalemedical research for both academia and industry.RECOMMENDATION 2INTEGRATE EXISTING DATABASES AND SYSTEMSONTO COMPREHENSIVE INTEROPERABLE DATAPLATFORMS TO ENHANCE THE USEFULNESS OFAVAILABLE DATAThe integration of databases that currently existseparately from one another will expand theircollective analytical scope and enhance theirusefulness. It is essential to establish platformsthat not only connect medical checkups withmedical treatments and nursing care data, butwhich allow the relevant personnel to obtaincomprehensive information on the variousactivities of individuals from the time they were RECOMMENDATION 1 PURSUE THE ADOPTION OF INFORMATION USAGE RIGHTS CENTERED ON ADVANCING THEINTERESTS OF CIVIL SOCIETY Japan has significant amounts of data at hand, but very often fails toobtain the consent of individuals in advance, making it impossibleto make use of the data. Moreover, even for data held by thegovernment, in practice, it remains difficult to use the dataconsidering the dignity and rights of the individual.The integration of fragmented databases will broaden the possiblescope of analyses and increase the value and usefulness ofdatabases. However, we have yet to reach the stage in which wehave a platform that would enable us to establish a unifiedunderstanding of everything that happens to the person startingfrom their birth to death, let alone the linkage of health checkup,medical, and nursing care data. One reason for this is that many companies generating data have anegative view of the European (EU)-type "data portability rights,"because there is no benefit provided in transferring data. In orderto solve this problem, there needs to be a mechanism in which aportion (e.g., a few percent) of the compensation obtained byindividuals in data transfers is returned to companies thatgenerated the personal data.With privacy concerns in mind, new technologies and legal conceptssuch as ”the right to use of information" should be implemented assoon as possible.*“The right to use of information" is a concept similar to the "dataportability right" in the European Union (EU), but differs in that itrequires companies that generate personal data to return a part ofthe remuneration obtained by individuals through data transfer.CURRENT ISSUES RECOMMENDED DIRECTION| ACTION 1PAGE | 04
元のページ ../index.html#10